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If you are using a Windows computer:
- Use Firefox, Google chrome or Internet Explorer 10 or later as your internet browser
- Flash player plugin (if your browser doesn't support HTML5 video)
If you are using a Mac OS computer:
- Use Safari or Google Chrome as your internet browser
- Flash player plugin (if your browser doesn't support HTML5 video)
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If you experience any problems and need support, please contact us at servicedesk@sobi.com
This website has been developed by Swedish Orphan Biovitrum AB (publ) (hereinafter referred to as “Sobi”). Sobi offers this website, including the information and materials available on this site, subject to the acceptance by you, the user, of these Terms of Use. Please read these Terms of Use carefully before you start to use the website. By accessing or using this website, you acknowledge that you have read, understood and agreed to these Terms of Use. If you do not agree to these Terms of Use, please refrain from using this website. Your use of this website is also subject to the Privacy Policy and Cookie Policy.
Disclaimer
The information and materials on this website are provided for general information only. Any medical information is for informational purposes only and is not a replacement for advice given by a physician or other medical professionals. Advice should be sought from a health care professional upon specific questions regarding a medical condition. While Sobi makes reasonable efforts to ensure that the information and materials on this website are accurate, complete and up to date, it makes no representations or warranties (express or implied) as to the accuracy, reliability, completeness or currency of the information, content, software, tools or links provided on or through the use of the website, or on any website or websites linked to this website. This website and its content are provided "as is". You acknowledge and agree that you assume full responsibility for your use of this website. To the fullest extent permitted by applicable law, Sobi expressly disclaims any liability for any direct, indirect, incidental, consequential or otherwise special damages, losses or injuries resulting from the use, inability to use or reliance on any of such information or materials. Sobi may make changes to the information and materials included on this website at any time, without notice.
Hyperlinks
This website may contain links to other independent internet sites maintained by third parties over whom Sobi has no control. Any links are provided solely as a service to our visitors and Sobi has no responsibility for the content on such third party websites. Linking and visits to other websites via Sobi’s website is thus completely at your own risk.
Copyright
All content on this website (including, without limitation, text, photos and graphs) is protected by copyright and is the exclusive property of Sobi or its licensors. Information and materials may only be accessed, copied and downloaded for your own non-commercial use. Any other use, including but not limited to, the reproduction, modification, distribution, transfer or sale of, licensing or publication of any information or materials from this website, its entirety or in part, is expressly prohibited.
Trademarks
All trademarks, logotypes and layout objects on the website are registered or unregistered trademarks and the exclusive property of Sobi, its licensors or other third parties. It is prohibited to use, download, copy or distribute any trademarks, logotypes and layout objects in any form without the owner’s prior written permission.
Cookies
This website uses cookies to enable Sobi to collect information about the user’s use of the website. Cookies are small pieces of information stored in the memory of the user’s browser. Sobi does not use cookies for any other purposes than those described in the Use of Cookies section. Please read more about Sobi’s use of Cookies on this website in the Cookie Policy.
Privacy Policy
Sobi may, when it is necessary for the purposes of Sobi’s legitimate interest in order to enable users to access the website, collect, use and store different kinds of personally identifiable information such as names, internet protocol (IP) addresses, email addresses and other technology on the devices used to access the website. Sobi will only use the user’s personal data for the purpose it is collected, including inter alia to enable access and use of the website. Please read more about the processing of your personal data in the Privacy Policy.
Governing law
These Terms of Use are governed by the laws of Sweden.
Contact
You can contact Sobi by sending an email to info@sobi.com.
This Privacy Policy applies to this website and other websites owned by Sobi that directly link to this policy. Please read this Privacy Policy carefully and feel free to contact us if you have any questions.
This Privacy Policy explains what personal information may be collected and processed about you during your visit to a Sobi owned website to which this policy applies, and how we use that information. It includes a description of your data privacy rights.
Personal data
We may collect personally identifiable information, meaning any information relating to an identified or identifiable person, such as names, addresses, telephone numbers, email addresses, country of residence only when voluntarily provided by you when you register or otherwise voluntarily submit information to us. Some of this information may relate to your health, which is particularly sensitive.
Data controller
Swedish Orphan Biovitrum AB (publ) (“Sobi”), with registered offices at SE-112 76 Stockholm, Sweden, e-mail address privacy@sobi.com, will collect and process your information as controller of the database.
Legal basis for processing
The personal information you provide is used by Sobi for the purposes of our legitimate interest in order to maintain and improve our website and to respond to requests for information and services.
Some personal data provided by you will be processed by Sobi after receiving your consent to the processing. In such case we will provide you with additional information related to the specific case and ask you to provide consent prior processing of such personal data. If the consent concerns a child under the age of 16 (or such other lower age determined by the local laws where you live), consent must be given by an authorized person with parental responsibility for the child.
Data submitted by you
You may visit our website without registering or submitting any personal information. However, you may be submitting personal information to us through contact forms or through a registration page. If you register or submit personal information, for example in order to receive e-mail updates, we will collect personal information that you have provided, such as your name, address, telephone number, e-mail address etc. when it is voluntarily submitted to us. It will be clearly indicated if and when we collect such information from you.
How we will use your personal data
By providing your personal information to us, you agree that, where it is permitted by local law, we may use the information:
We use aggregate information, which does not identify individuals, to monitor customer traffic patterns to the website and particular pages, as well as site usage, in order to help us improve the design and layout of the content.
Direct marketing
We will not use your personal information for marketing activities unless you have provided explicit consent to receive marketing communications from us.
Disclosures
As previously mentioned, we use third party contractors that perform services for, or with, Sobi and process personal information according to our instructions in relation to Sobi owned websites, for instance for the purposes of conducting research, processing information or maintaining our website, content, or programmes. Such third party contractors are restricted from using the data for any other purpose other than to provide services for, or with, Sobi. Sobi is responsible for any processing by such third parties, and will ensure that such contractors have entered into written agreements allowing Sobi to comply with our obligations under this Privacy Policy and applicable laws. Your personal information will not be disclosed to any other third parties unless you have explicitly given your consent to such disclosure or if it is required by law.
Transfer of data outside the EEA
This website is owned and operated by Sobi in Sweden, but the information you provide may be accessible or transferred to our affiliates, vendors or suppliers in other countries, including countries outside the European Economic Area (“EEA”). The level of legal protection for personal data is not the same in all countries and may not provide the same level of protection as the data protection laws in the EEA or of the country in which you live. In case of such transfer, Sobi will take reasonable efforts and security measures in an effort to keep your information secure, and Sobi is responsible to ensure that the transfer takes place in accordance with this Privacy Policy and applicable laws. You may contact us at privacy@sobi.com if you have any questions about the methods we use to safeguard any personal information transferred outside the EEA.
Security of personal information
We take reasonable steps to protect your personal information from loss, misuse, unauthorized access, disclosure, alteration or destruction by using security precautions that provide for industry standard protection. However, no data transmission over the Internet can be guaranteed to be completely secure. As a result, to the extent permitted under applicable law, we make no warranty, express or implied, concerning the security or integrity of any personal information.
Retention and erasure of personal information
We will retain your information only for the period necessary to fulfil the purposes outlined in this Privacy Policy or the period to which you have consented, unless a longer retention period is required by law.
Information regarding your rights
You will at any time have the right to access your personal information, to have it rectified, erased or to transfer it to other organizations at your request. You also have the right to object or to restrict some processing and, where we have asked for your consent to process your personal information, to withdraw your consent at any time. If you withdraw your consent, we will stop any future use of your personal information (however, if you have given your consent to using your personal information in publications, for example educational or marketing materials, personal data may continue to appear for some time in any publications already in circulation).
If you have any questions, requests or complaints about how we process your personal information, simply write to us using the email address: privacy@sobi.com.
If you have any comments or complaints regarding the way your personal data is being handled, you have the right to contact the supervisory authority in Sweden (Swedish: Datainspektionen, see this link ) or in the country where you live, to lodge a complaint.
Links to other sites
This website contains links to a number of sites that we believe may offer useful information for our website visitors. This Privacy Policy and the obligations under it do not apply to such websites (unless the other website is owned by Sobi and directly links to this policy). We suggest contacting those websites directly for information on their privacy, security, data and collection policies. Sobi cannot be held liable for any actions by or content provided by such third-party websites.
Contact
We welcome any questions, requests, comments and complaints that you may have regarding this Privacy Policy. Please do not hesitate to reach out to us by writing an e-mail to privacy@sobi.com.
Opting out of further communications from Sobi
If you have elected to receive information about our products or services and wish to opt-out of receiving such information, then you can do so by sending an email to privacy@sobi.com. You should clearly state on all communications: your name, username (if any), registration details (if any) and the name of the website.
Amendments to this Privacy Policy
We may update this website Privacy Policy from time to time. In case of material changes to the Privacy Policy (meaning any changes that materially affect your rights), a temporary notice will be published on the website.
Last updated: 14/04/2021
Our website uses cookies.
Insofar as those cookies are not strictly necessary for the provision of our website and services, we will ask you to consent to our use of cookies when you first visit our website. If the cookie is necessary for the provision of our website and services we will use such cookies based on our legitimate interest.
About cookies
A cookie is a file containing an identifier (a string of letters and numbers) that is sent by a web server to a web browser and is stored by the browser. The identifier is then sent back to the server each time the browser requests a page from the server.
Cookies may be either "persistent" cookies or "session" cookies: a persistent cookie will be stored by a web browser and will remain valid until its set expiry date, unless deleted by the user before the expiry date; a session cookie, on the other hand, will expire at the end of the user session, when the web browser is closed.
Cookies may not contain any information that personally identifies a user, but personal data that we store about you may be linked to the information stored in and obtained from cookies.
Cookies that we and our service providers use
We and our service providers use the following cookies:
Managing cookies
Most browsers allow you to refuse to accept cookies and to delete cookies. The methods for doing so vary from browser to browser, and from version to version. You can however obtain up-to-date information about blocking and deleting cookies via these links:
(a) https://support.google.com/chrome/answer/95647 (Chrome);
(b) https://support.mozilla.org/en-US/kb/enhanced-tracking-protection-firefox-desktop (Firefox);
(c) https://help.opera.com/en/latest/security-and-privacy/ (Opera);
(d) https://support.microsoft.com/en-gb/help/17442/windows-internet-explorer-delete-manage-cookies (Internet Explorer);
(e) https://support.apple.com/en-gb/guide/safari/manage-cookies-and-website-data-sfri11471/mac (Safari); and
(f) https://support.microsoft.com/en-gb/help/4468242/microsoft-edge-browsing-data-and-privacy (Edge).
Blocking all cookies will have a negative impact upon the usability of many websites.
If you block cookies, you will not be able to use all the features on our website.
Cookie preferences
You can manage your preferences relating to the use of cookies on our website by visiting: Cookies Settings
Our details
This website is owned and operated by Swedish Orphan Biovitrum AB (publ).
We are registered in Sweden under registration number 556038-9321, and our registered office is in Stockholm.
Our principal place of business is at SE-112 76 Stockholm, Sweden.
You can contact us:
Last updated: 14/04/2021